Boston University Research Study: Are you a young adult, teen, or student with a developmental disability? We want your opinion!

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LABBB Community:

Over the past few years LABBB has participated in a few research studies with Boston University. We are always interested in being part of research studies and would like to share this information with our parents. Below is some information on a new study from B.U. that I would like to forward to you.

Patric

Dear Young Adults, Youth, and Parents,

Usually professionals, like teachers and doctors, and other adults like parents complete tests or answer questions about what youth with disabilities can and can’t do. However, youth may feel differently than their parents or professionals. It is important to find out what youth with disabilities think about their own abilities and needs.

This study is looking for young adults, teens, and students ages 8-21 with developmental disabilities such as cerebral palsy, autism, or intellectual disability to answer questions about how you do different everyday activities, like taking care of  yourself, getting along with other people, and getting around.

Your answers will help us make a new questionnaire that is just for youth and young adults with developmental disabilities.

Youth will meet with us two times, about 1 week apart, to answer the questions on a computer program.  We will meet with you at your home or other location that is convenient and comfortable for you. We will help make sure the questions are not too hard. The interview will be conducted by an adult researcher who works at Boston University. A youth researcher with a disability may also help with the interview.

After youth meet with us for the second time, youth will receive a $20.00 gift certificate.

If you are interested in learning more, contact Jessica Kramer. She is in charge of this study at Boston University. She can answer questions and help you decide if your child wants to be involved. You can reach her atyellbulab@gmail.com, 617- 353-7522, or 617-353- 2702. Contact her today to be part of this study and share your opinion.

BU

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