In episode #20 we talk about sibling support with Emily Rubin. Emily is Assistant Professor of Psychiatry at UMASS Medical School and Director of Sibling Support at the Eunice Kennedy Shriver Center. She is also Co-founder and Executive Director of the Massachusetts Sibling Support Network (MSSN). Emily is a Licensed Social Worker.
This was a special podcast and it was a reflective experience for me as a sibling of a sister with special needs. Emily shares her research on sibling support groups and her perspective and knowledge on this subject is profound. This is a must-listen for families and siblings and there are many resources you can access.
Check out the MSSN website at http://www.masiblingsupport.org! You can sign up for a free membership at https://masiblingsupport.org/get-involved/membership-sponsorship-opportunities/, and you can find us on Facebook, too: http://www.facebook.com/masiblingsupport.
More information is available on these links:
Supporting siblings of youth with mental health needs: https://www.mass.gov/files/documents/2016/07/tu/supporting-siblings-2012.pdf
MSSN educational presentations: https://masiblingsupport.org/wp-content/uploads/2019/02/MSSN_EducationalPresentations_2019.png
MSSN research brief on siblings: https://masiblingsupport.org/wp-content/uploads/2019/10/state_of_siblings.pdf
In this episode, we talk to Camille Grimes, AFC Manager, from Opportunities for Inclusion to learn about an under-utilized resource for parents. Adult Family Care (AFC) is a MassHealth funded program for individuals, 16 years old and over, eligible for MassHealth Standard or MassHealth CommonHealth, who have a medical or mental condition and require daily cueing and supervision or physical assistance with at least one activity of daily living skill (ADL) such as bathing, dressing, eating, ambulating or toileting from an AFC caregiver. In addition to providing personal care, an AFC caregiver must live with the individual and provide or arrange for meals, transportation, companionship, and ordinary housework. The caregiver also manages medical appointments and medications, if needed.
Caregivers receive a tax-free stipend for the care they provide, which ranges from $9,000-$18,000 annually, depending on the level of care necessary. They also receive on-going support from a registered nurse and a care manager. The caregiver may be a friend parent or other relative, but may not be the spouse or legal guardian.
To learn more about this program Contact: Barbara Dunker, RN, AFC Program Director, 781-899-1344 x4710 firstname.lastname@example.org